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| Easter dress |
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| best friends |
It has been awhile since the last post. Don't fret, it's because our days and weeks have been "normal"! JoJo is doing great! Not much change from the last post. She loves going to the dog park and going for walks. Really anytime she is outside she is content. She has been healthy and SUPER happy. She loves to scream and talk to us. This kid has a lot to say about life. To bad I can't understand her because I am sure she has some pretty insightful things to say.
Here is what is coming up for the rest of this month...
****schedule change: surgery is moved to May 11th***Josephine is getting a G-tube (permanent feeding tube) and a new port! These two procedures will happen simultaneously just so we we limit the times she is put under. Although she is in great shape for surgery there is still a higher risk factor for her than other children given her heart condition (cardiomyopathy). The doctors and Mom and Dad are very confident that she in perfect health and this surgery will be a piece of cake!
Speaking of cake.........
April 27th is JoJo's birthday!! And what a glorious birthday it will be. I believe that if we didn't seek out answers for our concerns about JoJo's health we wouldn't be celebrating her first year of life. My playful happy baby was fading quickly in December... But today, she is a JOYFUL, smart, sweet and sassy spirit who we love so dearly. We will celebrate her first year of life at the hospital while getting her weekly infusion! Its only appropriate. We want to celebrate with her caregivers who put so much time and energy into taking care of her. We celebrate them for giving us the opportunity to celebrate JoJo's birthday.
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| thanks to our nurses and doctors infusion days are always a blast! |
Thank you to those who continue to pray for our family and who continue to reach out to share their support. There is no way we could do this without our community.
She is such a beauty. Thanks for sharing her joyful existence and her smiles. I pray for your family every day.
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ReplyDeleteSo glad to hear Jojo is doing well and giving you guys some sass and 'tude!! Some exciting days coming up with her birthday and surgery! That g-tube will make her life and mobility so much easier! G-tubes are so much easier to manage than NG tubes in my opinion! Did your doctor say if she would be getting a mic-key button eventually instead of a g-tube? Those buttons are practically flush with the belly and ideal for sassy little ones ;-)
ReplyDeleteSo excited for Jojo's upcoming birthday! :-D
So glad to hear Jojo is doing well and giving you guys some sass and 'tude!! Some exciting days coming up with her birthday and surgery! That g-tube will make her life and mobility so much easier! G-tubes are so much easier to manage than NG tubes in my opinion! Did your doctor say if she would be getting a mic-key button eventually instead of a g-tube? Those buttons are practically flush with the belly and ideal for sassy little ones ;-)
ReplyDeleteSo excited for Jojo's upcoming birthday! :-D
your daughter is so beautiful Megan! I pray everything goes smoothly this month & happy early birthday to sweet Josephine.
ReplyDeletexo, Paris (thebounceback)
So Happy she is doing well! She is too adorable. Happy Birthday on 4/27.
ReplyDeleteWhat a trooper she is!!! We are so very happy for you all that she is doing so well and pray that that will continue!! She is so lucky to have a mom and dad who are so wonderful, loving, and caring for her!! We will especially pray for success on May 11.
ReplyDeleteThe Meyer family is praying for Baby JoJo. You guys are so adorable and JoJo continues to impact individuals she's never even met. Love you guys!
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